Signing would greatly improve deaf people’s GP experiences

Deaf people have serious difficulties accessing basic healthcare services and their needs are being ignored.

Thirty per cent of deaf people in the UK are unemployed, permanently sick or disabled, according to the 2009 GP patient survey. This is three times higher than the general population. Fundamental issues lie at the heart of this statistic. Deaf people have serious difficulties accessing basic healthcare services and their needs are being ignored.

At SignHealth we continually hear anecdotal tales of appalling practice in the way deaf people are treated on the NHS, but it’s hard to get the exact detail. Some of our worst fears have been confirmed through a mixture of our own access report, statistics from the GP patient survey and anecdotal evidence.

Deaf people are facing constant difficulty with telephone appointment booking systems, verbal prompts when their doctor is ready to see them, and rarely have a clear understanding of their diagnosis and treatment. We have also found examples of GPs refusing to book interpreters because they cost too much and people not understanding their medication and taking the wrong amount.

Waiting times for interpreters in GP appointments is a massive problem. At the moment many people have to wait weeks to book a sign language interpreter who can make sure the patient and clinician are able to clearly communicate. There is an obvious link between these delays and poorer general health.

Some doctors argue that interpreters are unnecessary because a member of the family can interpret but this has clear confidentiality issues. You only have to hear one story about a deaf parent being given a diagnosis of terminal cancer through the sign language translation of their eight-year-old child to appreciate quite how wrong this is.

We recognise that there are not enough sign language interpreters and bookings can be difficult, but simple technologies are available to help.

We are urging GPs and hospitals to start using the online sign language interpreting service SignTranslate. This means that deaf people can have same day appointments with their doctor connecting via a remote interpreter at the click of a mouse.

There is also a strong cost-saving argument to solving these communication problems. Bad communication means deaf people have to see their GP on many more occasions than their hearing peers. Estimates put the number of additional appointments made by deaf people at around 625,000. With an average appointment costing £25, this equates to £15.6m each year. Research to date suggests that spending a fraction of this on making services more accessible will save the NHS millions.

The GP patient survey shows that deaf people are still the most misunderstood patient group. We can see that deafness has a profound impact on people’s wellbeing and general contribution to society and this is significantly worse than other minority groups.

At SignHealth we’re committed to highlighting these inequalities and bringing about improvements. Later this year, we’ll be leading a collaborative study into the health of deaf people. This will be the largest piece of research ever carried out in this field and we urge deaf people to register now on www.iwantbetterhealth.org.uk to bring about the changes that are so desperately needed. •

Steve Powell is chief executive of SignHealth, the healthcare charity for deaf people

Source: The Guardian

Co-operation raises £1 million for the deaf

Co-operation raises £1 million for the deaf

I am proud to announce that with the generous help of the Cumbrian public, the 37 local Co-operative stores in the area and other Co-operative businesses throughout the UK, £1 million has been raised so far for RNID (The Royal National Institute for Deaf People).

The Co-op has chosen the RNID as this year’s charity

This is fantastic news and I wish to thank all those who have donated to this very worthwhile cause at their local Cumbrian Co-operative store, even through these difficult times. This money will enable RNID to do even more to help people adjust to life with a hearing loss, and to campaign for people to take their hearing health seriously.

The Co-operative has chosen RNID as its charity of the year for 2009, and we have been overwhelmed by the support of staff, members and customers. However, it is a sad fact that it can take people up to 15 years to acknowledge hearing difficulties.

RNID’s message is simple; if you have hearing difficulties, dial nnnnnnn or visit www.rnid.org.uk/hearingmatters to check your hearing now.

JACKIE BALLARD
Chief Executive RNID
London

No mention of the word “deaf” in the letter by Jackie,  except for RNId’s full name.  However, the newspaper headlined the article with the word “deaf”. On the public front, is the word “deaf” now taboo at RNId?

Our representation is getting skewed here cos the letter publicly state that it is RNId’s remit to look after the hearing people’s hearing/hearing loss – which is a no bad thing – but masquerading under the “Deaf” banner is misleading and the press is not helping the situation. They should drop that from their name. I have the feeling the money will never reach the real Deaf people at grassroots and get passed around over our heads.

Everything about us, without us.

Source: News & Star

Don’t shoot the messenger!

A few days ago, I was contacted directly by someone who works in the subtitling industry. I thought the request should not only be directed at me but have it thrown open to the public. He kindly gave approval as after all, this is regarding a public service. You have this opportunity to state your preferences regarding subtitling:

OK, I have a confession. I am a subtitler and manage access services for a number of smaller UK channels. We are one of the few channels in the UK that cover all subtitling in-house, namely me doing all of it.

I trawl the internet a lot looking out for preferences from viewers as well as industry conventions. Having been doing this for some years now and after a lot of work with other subtitling conventions and media, I hope we have a good balance of what is standard and what our viewers want. One of the main things my viewers feed back to me is positioning and to combat covering music videos’ content (after all a director spent a lot of time making it look pretty), we settled on raising subs to the top of the screen. What do you think?

I would be interested to hear from you about any other preferences you may have and whether you think the genre of subtitled material should also influence the style and convention of a subtitle file.

Is it mainly C4 and BBC that you have issues with regarding positioning? What about ITV and any of the digital or satellite channels?

I look forward to hearing from you,

xxxx

and, an excerpt extracted from the 2nd email:

I have been working in subtitling for about 6 years after completing an MA in subtitling and translation (audio visual language transfer etc.). I also train subtitlers and have worked for a vast range of broadcasters and DVD companies here and abroad.

I have often thought it would be a good idea to reassess what viewers want. Ofcom have oft said the same but it’s never gone beyond some minor changes to their “recommendations”. We are, of course, always limited by technology and cost but I am very keen to know what people really want.

Although, the hub of the question concerned music video’s content, you can offer your opinions on any other programmes in general. Personally, I think subtitles should be at the very bottom of the screen and to disappear after adequate time to read it – rather than let the same sentence hang in mid-screen. Also, I really appreciated the differing colour of texts back (more commong in analogue service) to show who is saying what.

Web Two point Oh, No!

Adam Rothwell

Adam Rothwell

This fella absolutely knocked the issue of charities’ transparency on head.

The gist of his article is to encourage greater engagement with the stakeholders and taking on aboard their criticisms. He also suggested that charities should be open about their activities and heed the criticisms in order to learn from it. He also advocate the use of the internet to faciliate this engagement, which will bring better transparency. I couldn’t put it any better myself.

I refer to the online rumblings that have been ongoing in the D/deaf’s quarters online, such as The Regency and the monster thread at BBC Ouch’s See Hear forum. You can also view another blog by MM, a disgruntled RNID observer/member. I never thought I would see the day when I refer to MM but do read his blog to get some background, if you can seperate the “wheat from the chaff“.

Rothwell ended his article like this:

Although it’s painfully trendy to admit this, the internet greatly magnifies the advantages that transparency can bring. The web makes it easy to communicate with your supporters – and gives them, potentially, almost infinite chances to help you.

Any organisation would be foolish if it passed up this opportunity.  But charities – which ultimately depend on their supporters for their legitimacy as well as income – simply cannot afford to let transparency’s potential pass them by.

Amen.

Some background: Sorry if you heard this one before but it is relevant and a good example. Back in 2006, RNID withdrew their public forum as a draconian answer to flame war, that occurred inside forum. In one single swipe, the public have lost their platform to communicate with and within RNID. There is no sign of this forum ever being reinstated, ideally, under a more vigourous moderator. As the result, the majority of supporters have lost their “voice”, where RNID can learn from. This article would indicate that such action is a foolish move and they have ignored pleas to have it reinstated. Ever since, discontent rumbled on on blogs and forums elsewhere and it been reported that RNID are becoming increasingly distant in their ivory towers as members struggle to communicate with the higher hierarchy at RNID. By that stance, they can’t claim it is their legitimacy to represent us Deaf people if we can’t engage with them constructively. More recently, RNID’s Director of Advocacy and Policy have stated, on ThirdSector, that they recognise the importance of the internet for communication. That is rather an equivocal statement. Money. Mouth. Put.

It’s bad, bad, bad!

Lately, my wife and I have noticed the subtitles are getting higher and higher in the television pictures. It won’t be long before they end up smack in the middle of the screen. All the subtitling of the Channel 4 programs this evening have been located consistently high and blocking the pictures. Channel 4 is not the only culprit as BBC is starting to do the same, especially during Wimbledon (blocking out the scores). Sometimes, they let the subtitles “hang” when the spoken dialogue have already been uttered a long time ago and there is a lack of dialogue on screen.

I will be making a complaint regarding this as it is lack of thought on the subtitlers’ part as it is really annoying and spoiling our viewing pleasure. Does anyone else share the same irritation as we do?

Okey, whinge’s over.

New BSL app for iPhone

This landed in my inbox this morning.

British Sign Language Trainer

Screenshot

Screenshot

The marketing blurb goes like this:

Did you ever want to learn sign language?

Here is your chance to learn how to spell words in sign language. All 26 signs corresponding to the characters of the alphabet are displayed on the screen as buttons.

The buttons are in alphabetical order, making it easy to learn each sign. You’ll be able to spell anything that you like in a short amount of time.

If you are unsure if you are spelling the correct sign, just press the button to display the corresponding character.

Once you are proficient with the alphabet and you would like to continue training, give your iPhone to a friend, spell a word or sentence in sign language and have them translate what you just spelled.

Have fun mastering the british sign language alphabet

If you have used it or going to use it, it would be great if you could leave a feedback. I am not an iPhone user. I am going for N97 for my next phone but felt this new product is newsworthy although the title of the app is misleading. You don’t actually learn BSL as the app only contains the fingerspelt alphabet. Learning the alphabet doesn’t means you will acquire a language however this will be useful for novice signers enrolled on Level 1 BSL course.

TAG calls for Government action after independent Ofcom report on deaf telecoms

TAG is calling for Government action to improve deaf telecoms services following a new report from Ofcom that highlights the benefits that modernised telephone relay services could have on the employment and everyday lives of deaf people. The independent report, Voice telephony services for deaf people, was commissioned by Ofcom as part of its work to tackle the most critical issues that disabled people face with communications services.

The report says that modernised relay services – in use in several other countries, but available to only a very few people in the UK – could enable deaf people to be significantly more productive at work, help reduce their feelings of isolation and loneliness at home and make everyday telephone interactions less stressful and much faster.

Ruth Myers, chairman of TAG said “We are very pleased that this independent report for Ofcom has highlighted the all-round benefits of modernised relay services to deaf people and that they may even be more cost-effective than the existing basic text relay service. We now want the government to act promptly to ensure that modernised services can be available to deaf people at fair prices.
//
“The report echoes what TAG has been saying for a very long time: that the existing basic text relay service is very frustrating for its deaf users principally because it is too slow and does not allow natural fluid conversations. As the report indicates, the newer captioned and video relay services enable much faster, less stressful and far more effective means for deaf people to contact hearing people by voice telephone.” The continuing importance of voice telephone calls for the general population despite the growth in other forms of text communication like SMS texting, email and instant messaging is also highlighted by the report. Although voice calls by the hearing population have decreased a little in recent years, they have now stabilised at an average 90 minutes per week. Deaf people are therefore largely missing out on a vital mode of communication, an issue that could be addressed through the widespread availability of modernised relay services.

TAG is gaining support for its campaign from MPs of all the main political parties, many of whom are raising the issue in Parliament.

The Ofcom report on deaf telecoms is available at http://tiny.cc/fntjS TAG is a consortium made up of the British Deaf Association, Deafness Support Network, deafPLUS, Hearing Concern Link, National Association of Deafened People, National Deaf Children’s Society, Royal National Institute for Deaf People (RNID), and Sense.

Related links:

TAG
News’ source

Ofcom report 2009 – for Deaf people – in plain English

Taken from this page when alerted by this blog.

Voice calls for deaf people

Foreword

Everyone depends on communications, and most of us take for granted that we can pick up the phone, turn on the TV or surf the net. However, these everyday services can pose real difficulties for some disabled people.

At Ofcom, it’s part of our job to make sure that everyone has an equal chance to enjoy the benefits that modern communications can bring. That’s why we announced in our Access and Inclusion consultation (March 2009) that we would tackle the biggest problems faced by disabled people.

To begin with, we’re looking at the text relay service. We know this service is very important to people with hearing difficulties as it helps them to use the phone. However, it relies on technology that is 30 years old and, of course, many innovations have arrived since then including email, texts (SMS) and instant messaging.

To help us understand the issues, we asked the independent consultancy Plum to find out what people with hearing impairments actually need from communications. We also wanted to know whether those needs are being met, and whether new relay services can provide a solution.

Plum’s report has told us a great deal, and we’re pleased to present a summary of it here. We’re also grateful to the many people and organisations who helped with this important piece of work.

We are firmly committed to making sure that people with disabilities can get more from communications. At the same time, this is not just a matter for Ofcom: a wide range of issues needs to be discussed with government, the communications industry and disability groups.

We will have more to say on this important work later this year.

Ofcom July 2009

Voice calls for deaf people

A summary of the independent report by Plum Consulting

What the study covered

We all need phone services, and it’s a need that is growing all the time. We need them to find work and earn a living; to keep in touch with our family and friends; to find information and shop for things we need; and simply to take part in life.

But if you have serious hearing problems, the simple act of making a phone call isn’t simple at all. So in this study we looked at what deaf people need from phone services. We looked at whether those needs are being met, and asked if there are other services that could meet them better.

Services for deaf people: the situation now

There are around 850,000 severely and profoundly deaf people in the UK. For them, making a normal phone call is either difficult or impossible. Of course, there are other ways of communicating and many deaf people are heavy users of email, texting and instant messaging. But although this puts them on equal terms with hearing-people, none of these options is quite the same as a phone call.

After all, a call is about natural and flowing conversation with all the emotions and subtleties of the human voice. That isn’t the job of an email or text, and the time lag between sending and receiving makes this kind of ‘conversation’ painfully slow.

However, there is a service created especially for deaf people. It’s a basic text relay service which is funded by BT and operated by the Royal National Institute for Deaf People (RNID). It’s available throughout the UK, 24/7, for the price of a normal phone call.

Although deaf people told us they value the text relay service, it only has 11,000 regular users and the figure is decreasing. People in our discussion group told us that the service:

  • is slow, providing a typical conversation speed of just 30 words per minute. This means they can’t get much work done, and even simple social calls are a frustrating experience;
  • doesn’t allow natural, fluid conversation;
  • often suffers interruptions as relay operators change shifts or take emergency calls;
  • doesn’t work well for inbound calls. Hearing-callers often don’t know they need to dial a prefix to trigger connection to the relay centre;
  • won’t work with the automatic systems used in many call centres;
  • suffers from high hang-up rates by hearing-people who receive basic text relay calls; and
  • can suffer from mistakes when the conversation includes professional jargon or detailed information. This can be a real problem in many jobs, and when ordinary customers are dealing with businesses.

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